I know that I haven't updated our blog in a few weeks. Life has been crazy busy. For those of you who don't know two weeks ago we brought Baby Pascual into our home. He was two weeks old with Trisomy 13 which is a extra chromosome genetic disorder. He had a severe cleft lip and palate, a blood platelet disorder, a 6th pinky on each hand, heart and lung problems and his eyes never developed. Because of the cleft palate we had to line feed him through a gastric tube into his little tummy. He was an amazing baby with such a sweet special little spirit! He loved being held and loved on. When he cried we would carress his little cheeks and he would be instantly soothed. We grew to love him so much in such a short time. Sadly Pascual passed away early Sunday morning in our home. We miss him horribly but will always treasure the blessing of having him in our home. It is such a comfort to know that he is no longer in pain and that he went straight back to our Father in Heaven. This has been such an amazing experience for our family and has brought us closer together and reminded us to treasure the simple things. We have learned that service and love go hand in hand. I will add more about this precious baby and experience in the days to come. Thanks for the out pouring of love and support to our family.
UMI In North Carolina!
5 months ago


